Prayer for Keegan with Cancer

A close friend of mine Beth gave birth to a baby boy named Keegan.  He was diagnosed may 11 2010 of having Brain cancer.  At eight months old keegan has had three brain surgeries,three abdonimal surgeries, all before being diagnosed with a maligant brain tumor.  On May 11, 2010 he was again rushed into emergency surgery after being flown via life flight to Riley to remove a six centimeter tumor from his small brain.  He had 6 months of chemo the worst a child could get.  There was a 30 % to 50% survival rate.   During that time they were told they needed to take him to hospice got everything together and a phone call August 18 said no hospice just a stem cell transplant.  Everyone at church,facebook, friends and strangers prayed for this family. 

They went back May 11 2011 and had a MRI done.  The news wasn't good cancer in the spine and spinal fluid.   There world has been crushed and the place that they want to send them is to NYC.  This is long but this is what she wrote:

Thursday, May 19, 2011
Ethics, Morals and all that Stuff.....
As some of you may or may not know by now, the pathology that came back on the growth that was removed from Keegan's spine on Monday is Medulloblastoma (the same cancer removed from his brain a year ago).  They also took a sample of Keegan's spinal fluid while they where in the spinal column, results came back yesterday that there are free roaming cancer cells in his spinal fluid. To say the least we feel defeated. We feel that God has let us down and don't really know where to turn next. God is the great and sovereign healer so why hasn't he healed MY baby? I just don't understand, and with all the people prayer across the country and even the world, why does this have to be him; us.

We do have decision that are going to be made. Even though I personally feel let down by God I am looking to him for strength and wisdom to help make these decisions that NO, I repeat NO parent should ever have to make. Even my worst enemy. Without going into too much detail I will sort of outline the decision we are presented with at this time.
• Full brain and spinal radiation-while this is the only option to help fully irradiate any and all tumor cells floating in the spinal fluid, thus sterilizing it, it will severely effect his IQ and drop it many many points. Is this ethical or moral, I am still trying to figure that out. Do I take a child how is already special needs and compound that by 100x's  with full brain and spine radiation to try to save his life? I don't really know, we are at a loss here.
• Another option is Messocentric Chemotherapy. This is a combination of chemo drugs given orally and in the comfort of our own home that work at destroying cancer cells by cutting off the blood supply to these nasty little things. Supposedly side effects are minimal but this by no means is a cure.
• Third option, is 3F8 at Memorial Sloan Kettering Cancer Center in NYC . Dr. Kim Kramer is working with another doctor on this radioimmunotherapy. As quoted from her page:
"In my research, I am investigating novel treatments to eliminate microscopic tumor cells in the central nervous system. These novel treatments include monoclonal antibodies attached to radioactive substances (radioimmunotherapy) that are administered directly into the cerebrospinal fluid. We remain one of the few programs in the world committed to the cure of cancers of the leptomeninges. "

         While this sounds risky I am feeling in my heart it is the first and maybe the best way to restart this fight.   It will probably take some money but if anyone has any novel ideas for fundraisers I would be down.


I am asking for prayers for guidance and peace for Ry and myself along with our doctors and nurses and we come to decisions that no parent should ever have to make.

Thanks for listening, if you have anything to contribute I ask you to please leave a comment, if you have nothing nice to say though; like momma says don't say anything at all, this is a very trying time for our family and we don't need negative or unproductive words from the peanut gallery.
 

God Bless to everyone.  Keep praying a miracle happened once before it can happen again.

Posted on May 23, 2011 | Prayer Request

Discussion

MB said on May 23, 2011 at 3:24pm

I am in tears as I am reading it. I found myself praying as I was reading. Prayers will continue.

Ida Kaiser said on May 23, 2011 at 6:38pm

I thank you for praying for this family.  I am trying to get a bake sale together for this family so they can fly to nyc.  I wish I could send a picture of him he is so precious.

Amy said on May 23, 2011 at 9:08pm

Prayers are going up as tears are flowing down….my heart aches for this family.  I pray that the Lord brings your family an added measure of faith tongiht, along with guidance, peace, comfort and healing…..may God’s will be done and may He give you what you need to get through this.  God promises us that He causes all things to work together for good….Romans 8:23.

Dani said on May 24, 2011 at 10:13pm

Father, please infuse this family with Your Presence and thoughts.  As their minds are racing through so many tough decisions let them have complete awareness of You.  Please renew their spirits from this let down and pain they are facing.  Give them hope, Give them the knowledge and wisdom they need to make this life changing decision! We speak a hedge of protection over Keegan-we thank you for giving the doctors and nurses involved in this the knowledge and bless their work Lord. We call forth Your angels to start working on the path they will follow-they will have Godly Favor over everything they do! We also thank You, Father for blessing their finances with more than what they could imagine-we rest in YOU and Praise you for the miracle that this family is waiting for!  We crush, smash, loose and destroy all word curses that may have been spoken by doctors or other people! We speak LIFE and HEALTH into Keegan and receive all of this in Jesus Name AMEN

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